When Mr. Pen and I started dating, I knew he had trouble with his hearing. It started from birth, but wasn’t discovered until he was about 5 years old and since then he’s been wearing hearing aids. He has lost about 60% of his hearing, and supposedly his hearing aids bring it back up to 90% but I don’t believe it. His hearing loss presented an entirely new set of relationship and ultimately marital issues that many couples don’t face. The phrase, “you never listen to me” takes on an entirely new meaning when your spouse simply cannot hear you.
For most of our marriage, the issue has merely created irritation and annoyance. I know I cannot be mad at him for not hearing what I say, but it gets old very quickly when I have to repeat myself five times or more before he doesn’t hear what I say. We’ve learned a lot of tricks to help each other out, like I always make sure I have his full attention before saying something. If he isn’t looking at me and watching my lips, he most likely won’t hear me. And instead of yelling through the house, which he never hears anyway, it’s much easier to just find him when I need him.
Up until now it’s been something we’ve dealt with day by day and not really worried about, as we’ve adjusted to communicating effectively for the health of our marriage. The other day something happened that woke me up from this “ignorance is bliss” type state. We were baking a homemade pizza in the oven and Mr. Pen left it in a little too long; our oven smokes really easily and we have sensitive smoke alarms. The fire alarm started blaring and I expected Mr. Pen to run straight to the alarm to shut it off. But he didn’t. He stood there minding his own business continuing his work in the kitchen. I yelled to him, “go turn off the alarm!” and he kept doing what he was doing while the alarm screeched loudly. I ran to shut it off myself and asked Mr. Pen why he didn’t turn it off and he was oblivious; he had no idea the alarm went off.
I was shocked and stunned. How could he not hear that? Later he said it must have been too high-pitched for him to hear. He laughed it, off but it’s left me thinking about all the little ways his hearing has affected our quality of life… and now our parenting.
Mr. Pen is an amazing hands-on father who looks forward to each weekend and spending time with Baby Squiggles. But there have been things regarding his hearing that have affected his parenting and how we do it together. Probably the most obvious issue is that when Baby S wakes up in the night, it’s impossible for Mr. Pen to hear him. We talk about resentment toward the dads who tune out a baby’s cry, but imagine if your partner desperately wanted to but didn’t even have the ability to hear their child. Mr. Pen always invites me to wake him up to help if I need it and sometimes I do, but we face the common, “it’s just easier if I do it” dilemma.
I hate that I know I will never be able to leave Baby S or subsequent babies overnight for fear that Mr. Pen would never hear his cries in the night. Even if he sleeps with his hearing aids in, it’s likely the batteries could die but beyond that, his ears simply shut off.
Mr. Pen has his ways of coping with his disability, not all of them healthy. He feels particularly rude to continually ask people to repeat themselves, so often instead of asking for a second or third repeat, he merely nods and smiles. As his wife I know this trick that he often does even with me. It really affects our parenting because if I ask him to do something specific regarding the care of Baby S, or if I’m leaving for the day, he may not really hear me.
I’ve started to worry about the future regarding his hearing; it’s obvious that just over the 4 years we’ve been together that his hearing has worsened. We’ve talked about taking sign language classes together in the event his hearing is ever gone for good, but we haven’t sat down and done it yet. We have started doing daily signs with Baby Squiggles and it is helping us jumpstart learning ASL for ourselves as well. We hope that if it ever came to being completely deaf, we could afford cochlear implants, but we have no way of knowing if that would be an option.
Mr. Pen’s hearing impairment is a disability we face with day to day that so many people take for granted. Mr. Pen misses so many little things through it – but we continue to be grateful for the hearing he does have and what he can experience instead. As we look toward the future of our family, all we can do is hope for the best. And I constantly pray for patience.
Does your family face any disabilities? How do you cope?
hostess / papaya / 12074 posts
Wow, I can’t imagine living with impaired hearing. Your comment about the smoke alarm frightened me, though. Have you looked into smoke alarms that make lower pitched noises that he may hear? I’d be concerned that someday he is home with your lo (or lo’s…) and the smoke alarm goes off and he doesn’t hear it!
It’s good you’re getting to know ASL. It’s not very hard to learn – I took a class in college and while it was only one class, I still remember quite a few things.
guest
If you can, you may want to invest in smoke alarms that use flashing lights.
GOLD / apricot / 280 posts
Both my Maternal grandparents were completely deaf and had two childern. Neither of them could hear at all. Not only did they raise 2 exceptional childeren; they hosed travel programs for other deaf couples and traveled all around the world. They went to China, Japan, Germany, Australia, and even Egypt as tour guides. In these countries not only did they have to navigate not hearing but also that they didn’t speak the language/sign in these other languages. There are obsticles but you can overcome them.
There is a group called KODA (Kids of Deaf Adults) that you may want to look into for your kids. My Mom is a member of the adult group CODA.
My Mom signs to our kids because they will be bilingual and that usually causes speach delay’s so the signs will help them communicate.
GOLD / apricot / 280 posts
OOPS, I forgot to mention that my grandparents had their smoke dector hooked up to a light in their bedroom that would flash if it went off (the doorbell, telephone and alarm clock were also hooked to the same light). You may want to try something similar.
guest
With disabilities I look for hidden strengths. Our oldest is on the autism spectrum and I constantly see beautiful things in him. He can’t dress himself or carry long conversations. But he is affectionate and smart and silly….
Wishing you all the best as you find ways to adapt as a family!
GOLD / cherry / 232 posts
This is really interesting. My first thought was that there had to be some sort of technology to make you feel easier about leaving baby with your husband overnight on his own and googled baby monitors for the deaf and found some cool products, including baby monitors that vibrate, etc.
So at least that is a thought/option to get a baby monitor geared toward the hard of hearing/deaf. :)
hostess / honeydew / 9122 posts
Thanks for sharing your story. Maybe you could get some special smoke alarm so he can see it, rather than hear it. I know they have lots of gear out these days to make thing easier for him, and to help take better care of the baby, and so that you can get some piece of mind.
apricot / 458 posts
Has Mr. Pen been to an audiologist recently? How old are his hearing aids?
Both my grandparents have hearing aids. Apparently the technology has dramatically increased in the past few years. My grandparents thought new hearing aids wouldn’t help, but we’ve all been amazed at how new hearing aids have made such a dramatic impact in their quality of life.
apricot / 272 posts
I like the idea of taking sign language classes together now if/when he loses his hearing completely. I think it’s great that you’re thinking of this ahead of time.
& it sounds like there are a number of things you can do/buy to help out in the interim – flashing smoke detector, phone, etc. I imagine it is frustrating!
GOLD / apricot / 309 posts
This is really interesting to read! I have 30% hearing loss (at least, that’s what I was at the last time I was checked which was admittedly a long time ago) and I don’t wear hearing aids because they drove me nuts when I was a kid. I know that the technology has improved massively (my boss’s are linked into all of his Bluetooth devices) and I am wondering if getting a hearing checkup should be part of my TTC process, now. Thank you for sharing!
blogger / persimmon / 1234 posts
I love the idea of sign classes and I can only imagine that they’d be easier for him when he can still hear the instruction? Maybe a DVD set would be easier so it’s something you can do together on the couch for 15 minutes every night.
I have to agree with the other comments, is there any way you guys could spring for some safety precautions for the deaf – specifically the smoke alarms? A couple friends’ homes have burned down and it always seems to happen at night – the smoke alarms are the only thing that’s saved everyone’s life. I don’t mean to scare you, fire is just one of those things that scares the bejesus out of me!
hostess / papaya / 10349 posts
My husband has hearing loss too. It isn’t as severe as Mr. Pen’s, but each year it gets worse. A lot of things you wrote do sound familiar. I can’t yell for him from another room, when I speak to him I have to be on his good side or either facing him. I get annoyed when he asks me to repeat myself for the fifth time. I haven’t thought much about how his hearing loss will effect our parenting, mostly because we are still focusing on getting pregnant.
blogger / papaya / 12392 posts
@mediagirl: @katie: @Ms.SK: @Bao: @Mrs. Stroller: Our fire alarm actually does “talk” – it says, “fire, warning, fire” over and over until you turn it off. It has a red blinking light too – but I guess if you’re not looking at it, you wouldn’t notice. I would have to talk to the landlord about changing the smoke alarm, so I’m not sure all that would entail. We are in an apartment that has had a big fire before (5-10 years ago) and that’s why our alarms are SO sensitive. Our apartment is littered with fire sprinklers – so if in the unlikely event he was home alone with DS during a fire, the sprinklers would go off, so at least there’s that. But like you – it did worry me. That’s when this whole thing sunk in. Thankfully I’ve never had to be away from home – and I wake up at the slightest sound.
@Ms.SK: @AprilK: He actually does have a special alarm clock for the hearing impaired. It’s a vibrator that he puts until the mattress and it pretty much shakes the bed when the alarm goes off. I’m sure if we needed too we could find a baby monitor that worked similarly, however thus far I’ve had no need to leave overnight.
@Bluebonnet: That’s actually one of the real issues right now. He hasn’t had new hearing aids in 5-7 years and each year we allot money for them, and each year something happens that we just can’t afford them. Hopefully this will be the year!
@bienlivingdesign: @Mrs. Stroller: as funny as it sounds, we do the Baby Signing Time DVDs with Cobi! I let Cobi watch one video a day and we’ve picked up almost everything from the DVD. I like doing it this way because you learn the idiosyncrasies involved in ASL communication, it’s different than how your communicate verbally.
@Leialou: Oh I didn’t realize that! Very interesting. So he is only hearing impaired on one side? Like you, I didn’t think about how it would affect our parenting either! Once we were pregnant we did look into monitors for him, but decided it wasn’t worth the expense since I would most likely only be leaving during the day.
GOLD / grapefruit / 4008 posts
Wow, that sounds tough! I have a cousin who is hard of hearing (since he was a baby) and struggles w/things kind of like your husband…I can’t imagine how tough it is to be able to hear, but not really. I know it affected him a lot in school and still does everyday. Sometimes he hears us, sometimes he doesn’t and conversations in the car are impossible! I think learning ASL sounds like a great idea–having another way to communicate could be a great addition to your relationship, especially if the hearing loss keeps progressing.
cherry / 144 posts
Is his alarm clock the sonic boom? We have that one as well– my husband is hearing impaired (completely deaf in one ear, about 20% hearing with his hearing aid in the other) and I’ve looked into monitor options for him. There’s a baby cry receiver made by sonic boom that transmits to the alarm clock and shakes the bed shaker when it goes off. Worth looking into for the future : )
guest
Thank you so much for sharing this. My husband has had trouble with his eyes since birth. He had a series of corrective surgeries and implants after college. When we met he no longer needed glasses or contacts. We were married for less than a year when he had a detached retina. The surgery to repair the tear was over 3 hours long and terribly painful. Unfortunately he had a lot of complications which required 5 more surgeries, and has never regained vision in the eye. He can still see some light so there is still some hope as far as his doctor is concerned, but my husband really doesn’t think he will ever get his sight back in his right eye and worries a lot about going completely blind. I try to stay positive.
We hope to try for our first baby in the summer. I know my husband worries a lot about being a good dad, and especially if he were to lose his vision completely and be unable to provide for our family.
blogger / papaya / 12392 posts
@Jenna: It’s a sonic boom – is that the same thing? I might have to get the baby attachment! where did you find it?
@jillian: oh my gosh – that would be so hard!!! I cannot imagine. I mean Mr. Pen’s hearing impairment is definitely a struggle, but he can still hear and I am so grateful… I think it would be so hard if he was unable to see. I’ll keep you in my thoughts and prayers and hope things look up for him… with all the medical advancements – there may come a new way to fix it!
pea / 7 posts
Audiologist here! There are sooo many accessories available for people who are deaf/hard-of-hearing! Harris Communications, HARC Mercantile, and beyondhearingaids.com are all great resources for these sorts of assistive listening devices (including sections for baby cry monitors!).
I can’t stress enough the importance of him being able to hear/feel/see a fire alarm alerting system. If you do nothing else, do this. Also, google “your state” + vocational rehabilitation, there are often programs in place to assist with funding for hearings aids for working adults, if you know where to look!
Has Cobi had a hearing test yet? If not (and even if he had newborn hearing screening in the hospital), you should keep an eye on his hearing as well!
GOLD / nectarine / 2707 posts
Thank you for sharing this!!! I never even thought about what parenting would be like in this situation.
GOLD / clementine / 823 posts
I have a partial hearing loss in one ear so can somewhat empathise with what your husband is going through. Atrophy after a perforated eardrum means that I have about 70% hearing in that ear. My biggest issue is being able to hear conversations in noisy environments – I struggle to hear people when we’re in the ocean, in a noisy bar, when the kettle is boiling, etc – when I’m not turned in the direction of the person. I tend to lipread a little bit, definitely beneficial when you are a high school teacher. I’m definitely a little bit nervous about being at a noisy playground and not being able to hear my distressed child… I’m going to have to watch them like a hawk!
I think that the resources that some people have recommended before could be really useful and I think learning ASL would be great for you guys too! With luck, you’ll never need it, but you have it for if you do.
blogger / papaya / 12392 posts
@SweetMamaM: Hey! great to hear from someone in a similar position. Mr. Pen struggles with the same things – hearing in noisy environments. Going out to eat while dating was usually a pain instead of a romantic affair because we couldn’t really communicate.
Thankfully even though DH is hearing impaired, he is very protective. I would never doubt his ability to care for DS even better than me!
@earinej: oh great to hear from you! Cobi had his NB hearing screen and we also alerted Mr. Pen’s problem to his pediatrician, so she is on the constant lookout for any change in his ears. He is very alert though and constantly responds to me talking to him, if I call his name he comes to me and he responds to other noises.
pear / 1601 posts
Thank you for sharing. I never thought about how life would be w/partial or hearing loss. Sounds like you have some great support from people with similar experiences.
blogger / olive / 98 posts
our family doesn’t have any disabilities to cope with thus far, but this was very interesting to read about. you and mr. sound very in tune, and to me this is the biggest issue.
guest
I’m glad several people have already mentioned a flashing, vibrating fire alarm. Some fire alarms are just at too high a frequency to be of any real use. Just on a side note you should also always check in advance when your staying in that they have a vibrating fire alarm available. I know in the UK it’s a requirement by law to have one as part of the disability act.