I think this title only slightly exaggerates what it’s like when your twins simultaneously come down with a severe case of Hand, Foot, & Mouth Disease (HFM). The thought of living through the last four days ever again makes me actually shudder.
HFM is a virus that causes a rash that is generally around the mouth, hands, feet, and sometimes the bottom, a fever, and blisters in the throat and mouth. It’s highly contagious and is generally spread through nose and throat secretions (coughing, sneezing, etc.), blister fluid, and feces.
Friday everything seemed peachy. They boys had just the tiniest bit of a rash on their faces, but they were drooling like crazy, so we didn’t give it a second thought. About 2 a.m., Finn started crying. I went in and noticed he felt pretty hot. I took his temperature and it was 100.6 degrees. Not terrible, but the boys aren’t super fever prone, so I knew this didn’t bode well. We gave him some ibuprofen and a bottle, but he just could not settle back into sleep. After about an hour and a half of both Mr. Blue and me giving it our best efforts, he finally fell asleep. The next morning both boys’ rashes were looking notably angrier, and they both had a fever of 101+. Having seen some pics of HFM on Hellobee, I predicted that’s what it was. I posted a picture on Instagram of Elliot’s sad little face, and Dr. Instagram agreed with my diagnosis. We decided to take Finn to the weekend clinic just to be sure it was just a virus. If it turned out to be something that needed treatment, Mr. Blue would bring Elliot to the doctor at that point.
The doctor confirmed that we were looking at HFM and said he had a pretty severe case. The back of his throat, tonsils, and his mouth were covered in painful blisters. She mentioned that some doctors give a mixture of a few things plus lidocane, but that she didn’t recommend it for babies this young if they were still drinking their bottles. They had been refusing all finger food but had still been drinking about 3/4 of their bottles, so she wanted us to only give them something for the pain. She recommended just using ibuprofen or Tylenol, rather than alternating, so they would still have a bit of a fever to help fight off the virus.
Naturally, after returning home from the doctor, they started refusing pretty much their whole bottles. Saturday night was a disaster. Finn woke up throughout the night. Elliot just never went to sleep. He slept for 30-45 minutes once or twice, but mostly he just cried, whether he was being held or not. He would toss and writhe regardless of how we held him and would cry if we tried to sit while holding him. By 1 a.m., we were all exhausted. At that point, I figured we had two options: put him in the little stroller and push him around the kitchen hoping that would get him to sleep or load him up in the car and try that. I opted for driving around.
He fell asleep almost as soon as I pulled out of our driveway. I went by Starbucks for some coffee, started an audiobook using my headphones, and drove around the loop until 3:30 a.m. About then, he needed Tylenol, so we headed home and tried to lay him down again. He slept for about an hour. Mr. Blue got up so I could get a bit of sleep. Elliot went back to sleep, but woke up again in another 45 minutes. At this point it was about 5:15, and both boys were up at the same time. After we tried to get them to eat a little bit of their bottles, I loaded both boys up and drove around for another hour and a half.
When they started to wake up, I headed home. Mr. Blue watched the boys, while I slept for about an hour and a half. Sunday was equally terrible. They were so listless and miserable. They wouldn’t eat or drink, so we called our doctor’s nurse line. They said to go back to alternating ibuprofen and Tylenol to help manage the mouth/throat pain and the only other thing that we could try was to mix an antiacid medicine (like Maalox, Mylanta, etc.) and some baby Benadryl, but that it’s difficult to use with babies that are too young to understand to swish it around their mouth to coat all the sores. We decided to try it and swab the mixture around their mouths with q-tips. This did seem to help some, though it was by no means a magical cure. My mom offered to make the drive down to help us, which we happily accepted. She arrived Sunday afternoon. Grandma Blue and Mr. Blue watched the boys while I snagged another little nap. The boys both ran fevers throughout the day in the 101-102.9 range.
Sunday night was more of the same: Finn woke about every hour. Elliot just couldn’t relax enough to sleep. I tried driving, but it didn’t work this time. We assembled the old swing and gave it a try. It kind of worked for small bits of time, but eventually we had to resort to just holding him. The good thing Sunday night was that at least once he went to sleep in our arms, he would let us sit down on the couch with him. We took turns holding him. Even though we weren’t getting much rest, at least he was finally getting the sleep his body needed to be able to fight the virus.
Monday morning dawned, and Mr. Blue got ready for work since I was the one staying home that day. The boys seemed to be feeling a bit better, but their faces looked even worse. Elliot had rash blisters pretty high up on his face and some even back by his ears. The rashes were bright red and just looked sore and awful. Throughout the day, though, we had signs that maybe the boys were feeling a little bit better. They still weren’t sleeping or eating great, but they weren’t as listless and their fevers were down to almost normal.
Monday night we laid them down in their cribs . . . and they actually went to sleep! Sweet mother of all that’s good, hope sprung within me. Elliot slept until about 12, but he went back to sleep quickly under Mr. Blue’s care. Finn woke up about an hour later and I got up with him. He had some of his bottle and went back to sleep. A bit after that, Elliot woke up again and Grandma Blue was on deck. This time, Elliot just struggled to go back to sleep and Mr. Blue and Grandma Blue both weren’t having much luck. I eventually pulled myself from a sleep that easily could have shamed a bear in hibernation (with about the same attitude, too). It was my turn to try, and Elliot must have finally been sufficiently worn out because he fell asleep in my arms as I walked with him. Eventually, I sat down and a while after that, I was able to lay him in his crib.
Tuesday was better in the sense that they were obviously beginning to feel better. They both ate about half of their bottles, and in the evening, they even ate a little bit of finger food. We didn’t have any fevers. The downside was it was a harder day overall because they were at that point where they didn’t feel good enough to play, eat, & sleep like normal, but they felt too good to just lay around and be held, which resulted in some seriously cranky Baby Dudes.
Wednesday they were back at daycare, I was back at work, and all was mostly good. They’ve been much happier, though their little faces still look so sad covered in scabs. Upon arriving at daycare today, the teacher told us that “every member of the Breakfast Club” (the same group of little ones that sit and eat their breakfast together in the morning) were out on Monday and Tuesday with HFM. Further evidence on how contagious this hateful little virus is.
We all survived our first (and God willing, only) round of HFM, but I can’t say we survived it with a lot of grace and style. It has been our worst illness to date, and I wouldn’t wish it on a soul. During really terrible rounds of the sickies, I just try to remember to be thankful that the Baby Dudes are only temporarily sick and aren’t dealing with anything chronic or life threatening. In the middle of the night when you’re on hour 3 of driving in circles to get your kiddo to sleep, it’s good to hang onto whatever perspective you can get!
Has your LO had HFM?
blogger / grapefruit / 4836 posts
Oh momma…
That does sound like Hades. Pure. Total. Hades. So glad they are feeling better…I hope you get some sleep too!
nectarine / 2771 posts
That sounds AWFUL! Glad they are feeling better, and your boys are so lucky to have parents that love them enough to drive around on loop at 1am!
GOLD / wonderful pomegranate / 28905 posts
Life in Hades sounds about right for HFM!
pomegranate / 3779 posts
That sounds like pure torture. I’m glad the little dudes are feeling better.
GOLD / wonderful coconut / 33402 posts
That sounds like hell, pure hell. You deserve a spa day for surviving!
GOLD / wonderful apricot / 22646 posts
pure hell is right. Ugh glad they’re on the mend!!!
guest
So sorry! Ugh, can’t imagine having two sick at once. You’re a strong mama. HFM made its way around our daycare last year, just as mine was turning 1. Luckily mouth blisters weren’t too bad for us. However, my baby has eczema and very sensitive, fair skin. The rash ended up breaking out on her ankles, where she previously had dry rashy skin, before getting the virus. The blisters were so awful, swollen, nasty – our doctor had never seen a case so severe. She actually tested for herpes and treated like fever blisters. However, the test for herpes was negative and she concluded it was just a horrible reaction to HFM. I can’t imagine if her mouth had been the same. It took months for her rash to completely heal and the little red scarred area to fade. Lucikly, after the first two-three days we didn’t have any other symptoms. She just looked pathetic. It is very contagious and our dr recommended she return to daycare asap. She said all the kids would get it eventually, so there was no reason to restrict her. Also, many parents get it and the only symptom is a sore throat. Beware, its a tough one!
pomegranate / 3053 posts
Wow… I felt your pain reading your post! :((((( Hope you’ve gotten a few good night’s rest since then.
My oldest (4 years) had HFM but only in his throat and pretty mild compared to your boys. He got it his first week at preschool in Asia which automatically puts him out for a week (gov’t requirement) and can’t go back unless we had a doctor’s note which means we had to go see the doctor twice. Luckily healthcare (even without insurance) is super cheap here so no biggie and it’s down the street. I can’t imagine having it all over like your little boys did. The doctor here told me to give my son ice cream. Did I? Nah, but gave him lots of cold drinks though which I think helped.
blogger / pomegranate / 3491 posts
Hand foot mouth is the worst. We had a mild case compounded with other yuck a while back, and I can’t imagine dealing with it full force times two. So glad they are on the mend!!
grapefruit / 4862 posts
Oh my gosh, this sounds just terrible. Never thought about how hard it must be to keep twins from BOTH getting sick- and how hard it would be to take care of two sick kiddos at once.
Random question- is HFM contagious to adults? Was there a concern of you or your husband getting it? It sounds super contageous. Did you do anything to try to keep from getting it? My biggest fear is being sick at the same time as my LO!
blogger / pomelo / 5361 posts
@kjpugs: adults can get it, but it’s generally not as severe, I think. We were nervous about getting it, but so far, so good! Sick twins are NOT fun and they always get sick at the same time, but thankfully we have never been super sick at the same time that they are.
pomegranate / 3401 posts
Omg! Poor babies! My LO has never gotten HFM….and hopefully never will!
cherry / 187 posts
That sounds horrendous! When my LO was about a year old, she got HFM twice within a few week period (there are apparently different strains of it!). She was actually at home and not at daycare during that time (our daycare provider took a 3 week vacation) which baffled me, but the Dr said kids get it from shopping carts and swings at the park too! We were lucky to not have such a severe case either time, but I totally did get it. Sore throat and sores on my hands. Lovely!
persimmon / 1165 posts
Oh how awful! Our twins came down with HFM disease a month ago, but it was nowhere near what you described going through. The blisters that came were only on their bottoms and a few on their hands and feet, none in the mouth thankfully. The main symptom we dealt with were high fevers. By the time the blisters appeared, their fevers were gone.
blogger / persimmon / 1225 posts
Wow, you poor things. I hope you never have to go through that again!
persimmon / 1479 posts
We just went through HFM two weeks ago and it is miserable. I fell like I carried her around for days straight, she would not let me set her down-not even to get dressed. It was exhausting, and she was so miserable. We kept LO out of daycare for a full week though just to be sure not to spread it, I would never wish this upon another parent.
blogger / eggplant / 11551 posts
That whole experience sounds like a nightmare…. I would’ve been at my wits end. I’m so glad they’re all better now and hope hope this never happens to you again!!! This is one of those diseases that has terrified me ever since I heard the name… I’m glad we’ve avoided it up to this point (knock on wood!!!!).
kiwi / 643 posts
OH. MY. GOD. Girl, I honestly don’t know what to say and cannot imagine the hell. I’m so sorry!
pomegranate / 3858 posts
We started at a new day care at the beginning of February, and apparently just missed a wave of HFM in the infant rooms. I’m sure we’ll get it eventually though!
guest
Ugh. HFM is the worst! I got it this year (thankfully my daughter must have brought it home to me but didn’t catch it herself) and I wouldn’t wish it on my worst enemy. Can’t even imagine how a baby would cope. Poor little guys!
GOLD / apricot / 341 posts
Poor babies! My son Alec had HFM when he was 11 months old and I got it too. It was pretty miserable. One of many weird diseases that I didn’t even know about before having kids…
blogger / nectarine / 2010 posts
OMG so horrible! We’ve never had it here, but a friend’s son was visiting and had it when Little M was 4 months old. They were only here for a night but her doctor advised that I wash everything he could have touched in super hot water and bleach. I did so much laundry that night in a total panic. I hope the boys never, ever, ever, ever get it again!
hostess / wonderful honeydew / 32460 posts
Oh man. Misery!!!
My kids haven’t had it yet!
papaya / 10560 posts
Yeah that sounds AWFUL! DS had chicken pox in November, and HFM sounds like it was even worse!
wonderful pomelo / 30692 posts
OMG!!! This makes me realize how truly lucky we were when Xander had HFM! He honestly didn’t seem affected by it at all in temperament (I think mostly because it didn’t affect his MOUTH at all)! I caught it from him and luckily also wasn’t affected in the mouth area – I just had terrible pain and itching on my fingers and toes!
So glad you’re past the worst part of it and hopefully you guys never catch it again!!!!
wonderful olive / 19353 posts
OMG!!! Bless all of y’all for going through this!! Glad they’re recovering fine now and it’s going away. I was stressed for you while reading your update.
kiwi / 548 posts
This brings back some terrible memories from when my son was 14 months old, but we only dealt with it with one child! My husband was convinced that all our neighbors were going to think we had gone mad when we were alternating between walks and car rides all night long. Good news is that my husband and I still talk about this as the darkest three days of parenting (and our son is nearly 3). We are obviously lucky for that to be the case, but it is still a difficult illness Here is hoping that your little guys stay healthy!
blogger / nectarine / 2600 posts
OMG! I had two sick babies for one day and no where as bad and one could be easily entertained with TV all day at least Bless you for going though this indeed!
guest
We are in the midst of HFM now, though nothing like what the little Blue twins had. How long until the rashes faded?