After reading this post on hypothyroidism by Mrs. Palette I was inspired to share my thyroid story. Ten years ago I was diagnosed with thyroid cancer.
I moved back home the summer after I graduated from college and was living with two of my close friends. Like most healthy college-aged kids, it had been a while since my last regular checkup and I’m not sure how long I would have gone without making an appointment if not for my Mom’s nagging to do so.
My doctor had a strong Brooklyn accent and wore, what I considered to be, too much make-up for a physician. She also had on a great pair of black boots even though it was the middle of the summer. My mind was mostly on shoes as she checked out my neck, so I was only half paying attention when she told me that she felt a “huge lump.” She tried to reassure me that, given my family history and my age, it was unlikely to be anything serious, but it still had to be examined. She scheduled a thyroid ultrasound for the following day and told me she would be in touch with the results. Considering I was feeling completely normal, I wasn’t worried in the least.
1. Thyroid Ultrasound – At the time, I barely knew what a thyroid was and didn’t care enough to look it up. So having a thyroid ultrasound was more of a hassle than something I was actually worried about. The next day my doctor called and said based on the ultrasound results she suggested having another scan and referred me to a specialist.
2. Thyroid Scan – A thyroid scan determines the size and shape of the thyroid gland and identifies areas that are over- or under-active using a radioiodine tracer. Thyroid nodules that absorb the radioiodine are usually benign whereas thyroid nodules that do not absorb the radioiodine have a 5% risk of being cancerous. My thyroid did not absorb the tracer.
3. Fine Needle Aspiration (FNA) Biopsy – My first appointment with the specialist was uneventful. He biopsied my thyroid but treated the process like a “just to be on the safe side” test rather than a “you might have cancer” test. The biopsy itself was a little painful but the procedure was over in a matter of minutes.
A few days after the biopsy a nurse from my doctor’s office called and asked me to come in to discuss the results. Everyone knows that doctors deliver good news on the phone and bad news in person, and although I knew that, I don’t remember feeling nervous about the appointment. Instead, I was annoyed that it was going to force me to delay a previously planned trip to visit a friend. Before hanging up the phone, the nurse told me to bring my Mom or Dad to the appointment. In hindsight, that should have been the moment when I realized something was wrong. But I didn’t realize it. Maybe I just didn’t want to think about it, or maybe it was because, at this point, no one had even mentioned the word cancer to me yet.
My mom came with me to the appointment and was sitting next to me when the doctor came in. He opened with “This is the part of my job that I hate,” and followed with some other stuff I don’t remember, but eventually he said the word “cancer”. I didn’t cry. I just remember wondering if I was going to lose my hair.
The doctor went on to tell us that he scheduled a CT scan for Monday morning and my surgery for Wednesday. Then he asked what my plans were for the weekend, which caught me off guard. I told him about my plans to visit a friend and, surprisingly, he urged me to keep them and have fun. He also said that whatever I do, do not go home and Google. I’m so glad I took his advice because I had a great weekend and cancer barely crossed my mind.
People say that if you have to have cancer then thyroid cancer is a good one to have. And while that is true, it’s still cancer and it’s never that fun. But what made the difference was having the incredible support of my parents and friends through the whole ordeal.
When I got pregnant, I contacted my endocrinologist to see what the pregnancy protocol was. She explained that initially the baby isn’t producing any thyroid hormone and will rely on me for it. For women with normal thyroid function, your body will adapt to the baby’s needs and produce more hormone. Since my thyroid was removed and I rely on a synthetic hormone replacement, we checked my thyroid levels every two months throughout pregnancy. My hormone dosage was adjusted twice.
It is amazing how much an unassuming gland can have such a profound impact on your energy levels. And while it’s hard to separate normal exhaustion from something more serious, keep your thyroid in mind!
guest
Thank you for this post and I’m glad you’re feeling good and healthy! I had my thyroid removed due to thyroid cancer one year ago. I already had a daughter before this and am now pregnant with my second. I’m curious if you had any concerns breastfeeding while on a high dosage of synthetic thyroid hormone? Because of the cancer I am kept slightly hyperthyroid so my medication levels are high. I’m worried about passing that through to my son once he does arrive and we breastfeed. My OB and endo can’t give me a straight answer
blogger / apricot / 250 posts
Hi Jackie! When I asked my endo that question she told me if was safe to breastfeed. While I was pregnant my thyroid dosage was increased to 225mg, but as soon as I delivered my endo told me to immediately go back to my pre-pregnancy dose of 150mg, so my dose wasn’t quite as high while I was breastfeeding. Did your OB or endo encourage you not to breastfeed? I don’t have any other friends to compare experiences with so I only have what my doc told me.
I hope you are doing better now!
kiwi / 501 posts
Thank you for your transparency!! I was 22 when I was diagnosed with Thyroid Cancer! It’s crazy that it can happen so young! So glad you are healthy and happy!
blogger / apricot / 250 posts
@Winnie13: I was around the same age when I was diagnosed. For me, one of the scariest things was that I was healthy without any symptoms and would have actually skipped out on that doctors appointment if it wasn’t for my mom nagging me (thank goodness for moms!).
I hope you doing well now too!
kiwi / 501 posts
@Mrs. Ice Cream: I went in for my annual and my nurse felt my throat and had my blood checked due to my enlarged thyroid. I was actually diagnosed with hypo before the cancer diagnoses. Very grateful for that nurse!! Like you, I was healthy and couldn’t believe how fast it all happened!! Doing well now, thank you!