The first time I heard about peanut desensitization using Oral Immunotherapy (OIT) was through my husband sometime last year. He had been super excited to share about this new treatment that could potentially eliminate our daughter’s life-threatening peanut allergy; except it required her to be exposed to the very thing that could end her life – peanuts. My first reaction was not excitement, it was fear. We had been so used to keeping our daughter away from peanuts, and teaching her to be vigilant and cautious about peanut exposure, that the idea of putting even one sliver of it in her mouth terrified me. We talked about it a little, but not much came of it.
Fast forward to this year, when we found out a friend’s son went through the treatments and his peanut allergy is almost 100% gone. This was two years in the making, but their success definitely piqued my interest, and gave me a more open mind to the idea. It would be amazing if we didn’t have to live in so much fear over peanut exposure. This would be worth it if I didn’t have to worry about her during travel or going over to friends’ homes, or just any time I can’t keep as close a watch on her.
Thus, I started my research. What does it involve? How long would it take? How does this work? All of these questions ran through my mind and more.
The treatment involves retraining the immune system to adapt to the allergen by actually ingesting the allergen. The patient starts off with microdoses of the allergen, then slowly increasing the amounts, until the patient is eventually able to handle regular-sized servings of the allergen. On average, this whole process takes about 29 months.
Oral Immunotherapy doesn’t just treat those with peanut allergies, it can also help those with other food allergies, such as egg, wheat, dairy, shellfish, and other nuts. The premise is the same – start off with minuscule amounts of the allergenic food, then increase it little by little until the body is better able to tolerate the allergen. Once someone goes down this path though, they will need to regularly and continuously eat the allergen in question in order to keep up the desensitization, or else the allergies can return full force.
There is one renowned doctor in Southern California who does Oral Immunotherapy, and he has a 99% success rate. We’ve signed Noelle up for the waiting list to explore this as a possible option for the treatment of her peanut allergy. We are currently #774 on the waiting list, so there is quite a demand for it. Though we only signed her up last month, the wait list is now nearing 1000. We probably won’t be getting in any time soon… but the studies and research for this are promising, so we’d like to know more.
Have you heard of Oral Immunotherapy or do you know anyone who has successfully done it?
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wonderful pomelo / 30692 posts
Thanks for this post! I’ve heard of it, but don’t know anyone that’s done it. Do you know if doing this therapy depends at all on the child’s peanut IgE value?
guest
I am so excited to see this post. Another good resource on all things OIT is: http://www.oit101.org/
GOLD / wonderful coffee bean / 18478 posts
@Adira: It doesn’t. Anyone can do it!
My daughter started a few months ago for peanut and so far so good. We hope to be done in a year’s time and it is super exciting to be conquering her allergy.
cantaloupe / 6397 posts
We’ve just started this with my daughter, she just turned a year! We are hopeful that this will be successful, so far so good
honeydew / 7488 posts
My daughter completed OIT this past April. It took her a total of 7 months. It was a major milestone for her to be able to consume peanut products safely and it is a huge relief to know she is safe from cross-contamination, etc. She has been eating birthday treats brought to the classroom for the first time ever (not to mention the daily peanuts she eats to keep her immunity up). I strongly encourage people to join the FB group OIT 101 and research the website OIT101.org if you are interested in learning more. Every doctor has a different protocol and varying degrees of experience. Each child’s allergy is also different and requires the doctor to really be on top of things to minimize any reactions (we had zero but this is not always the case). But as someone who has completed it, the freedom is totally worth it.
wonderful pomelo / 30692 posts
@Andrea: Thank you! So glad to hear it’s going well for you!!
@T-Mom: Ahhh!!! I’m so excited for you and your daughter!!! I’m totally going to have to bring this up to our allergist!!
wonderful clementine / 24134 posts
So exciting!
@T-Mom: How do you do peanuts daily? PB seems so messy and actual nuts can be choking hazard.
honeydew / 7488 posts
@Adira: Thanks! Don’t be surprised if your allergist pooh-pooh’s it. Lots of times they don’t understand it and have formed an opinion based on misinformation. Our former allergist was running a clinical trial but we were on the waiting list for a long time, so we found another allergist who does it in private practice (few hours away).
@T.H.O.U.: My DD is 8 so it’s not so bad for us. She eats them whole. She also eats peanut m&ms. Sometimes we do PB but she is not a fan of the texture. For younger kids, maybe people can use the powder in a smoothie? Most kids I know who are doing it are age 5+. When you are going through the desensitization protocol, you usually start on a liquid suspension or very tiny amounts of powder in applesauce, etc. until you get to larger quantities.
GOLD / wonderful coffee bean / 18478 posts
@Adira: I was just coming here to say the same as @T-Mom: try not to be discouraged if your allergist isn’t that supportive. Our regular allergist really doesn’t understand OIT at all!
wonderful pomelo / 30692 posts
@T-Mom: @Andrea: Thanks for the heads up! Definitely good to know.
wonderful clementine / 24134 posts
@T-Mom: Thats a great idea for the powder! My kids are loving the Bamba snacks (order from amazon) but they are expensive.
blogger / eggplant / 11551 posts
@Andrea: @sslm: @T-Mom: Ya’ll, so exciting to hear all these positive stories from the hive!!!
@Adira: Looks like you got all your questions answered.
This sure looks promising, doesn’t it? Wouldn’t it be amazing if one day our kiddos can consume their allergens freely??
wonderful pomelo / 30692 posts
@Mrs. High Heels: That would be a dream come true!!!
honeydew / 7488 posts
@Mrs. High Heels: I have heard wonderful things about the doctor you guys are waiting on! So I’m sure your DD will be in good hands when the time comes. Good luck!
cantaloupe / 6397 posts
@T.H.O.U.: I assume we will continue mixing peanut flour into applesauce, which is what we are doing for the OIT process.
We are so fortunate to have an allergist who is progressive and up on the latest research. They’ve just started this program where I live so my daughter is one of the first. There is a huge waitlist. I just feel so incredibly lucky to be able to do this!!!
guest
So happy to see this post! My daughter is on the waitlist for peanut OIT! Can’t wait for the freedom it brings!
guest
Are you able to share which doctor in Southern California you’re seeing? We are in OC and are looking into this for our son.
blogger / eggplant / 11551 posts
@Rachel – Yes, it is Dr. Inderpal Randhawa, and you can sign up for the waitlist here: http://www.socalfoodallergy.org/
guest
@Mrs. High Heels–Thank you! I was just looking at that website last night. I hope you’ll give us an update on how it’s all it’s going for you guys!