A little update after my last post about Juliet…

My twelve pound wonder

We went back after three weeks for a weight and follow up.  It was originally supposed to be after 2 weeks, but the doctor got sick and I wanted to see the same doctor who had been working with us, so I waited the extra week. The good news was Juliet gained a pound, moving from a solid 11 lbs even to 12 lbs even. While she was still not back on the charts for weight, she gained and wasn’t slipping farther down, which was key. She didn’t gain anything in height but she steadied off and stayed on the chart, and her head circumference increased slightly.

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The doctor was pleased with the results, and encouraged more supplementation and solids with higher fat content (bananas, avocados, anything laced with olive oil). She said we could even start Juliet on more lumpier foods liked mashed potatoes (heavy on the butter for her!). After a quick check the doctor said that maybe Juliet just had a smaller appetite combined with my genetics (I’m both short and thin and was very light and off the charts a lot growing up). As long as she kept steady once she was back on the charts, that would be fine.  We are returning in 2 weeks just to make sure she stays on track.

And now for the bad news. At our previous appointment, the doctor asked if Juliet was sitting up on her own yet.  At the time she hadn’t been, but I started to work with her more after that conversation so that day at the doctor’s I showed her Juliet sitting up.  While Juliet can sit up on her own, she still largely relies on her hands for support and balance, which the doctor said is called “tripoding,” and usually this is for babies when they first start learning to sit up. At Juliet’s age she shouldn’t be relying on her hands as much, and  should be able to use them to reach around and grab things.

After a few more questions both about Juliet’s physical and verbal abilities, the doctor said she thought Juliet might be delayed.  In that moment when I heard that word, another huge rush of emotions, worries, and guilt, came over me.  The doctor said the best thing to do would be to contact Early Intervention and get her evaluated and proceed from there.

When I got home I contacted Early Intervention immediately.  I spoke to a very helpful woman for about twenty minutes where she went over what Early Intervention was and did, some milestones for Juliet’s age range, and what would happen with and after the evaluation.  The next day I received a call the schedule Juliet’s evaluation for both a physical and speech evaluation, and we are now set to have them come to our home next week.

And so it begins.  When Drake was younger, I remember never worrying about his meeting milestones. When all the other moms in my Gymboree class were asking when so and so did this and that, I remember always thinking, he will get there when he gets there. I was never in a terrible rush to see Drake roll, crawl, stand, walk, talk etc. I knew he would do it one day whether I worried or I didn’t. I didn’t think twice when Drake crawled at 10 months and walked at 15; I was just happy he did it on his own time.  But for some reason, this time it feel different. Maybe its because the doctors never used the word “delayed” to describe Drake (I’m not sure if he was, but I know those milestones were on the later side compared to the average.) Maybe it’s because I have guilt already with Juliet’s weight gain, and now I’m worried I caused these delays as well as her weight issues. I don’t really know but hearing those words “delayed” once again turned on the mommy guilt and the endless worry.

I look at Juliet, her curious eyes, her trusting face, her infectious smile and I just feel powerless to help her grow and develop. I worry what delayed really means; after all she is only 8 months old, so how much can they truly assess anyway?  My biggest worry though is, what happens if she is deemed to be delayed, but not enough delayed to qualify for services through Early Intervention? How will this affect her development when she gets older and goes to school and is compared to her peers?  How will she fare compared to Drake, who I do think is bright and possibly slightly ahead for his own age?  How will I be able to help her catch up and stay on track?  Millions of questions worries and stress to swirl around my mind until our evaluation.

Early Intervention part 3 of 6

1. Guest Series: Raising a Child with Autism by Mrs. Bee
2. PDD-NOS by Mrs. Bee
3. The Ups and Downs by Mrs. Chocolate
4. Early Intervention Evaluation by Mrs. Chocolate
5. Is My Child Delayed? by Mrs. Bee
6. Pursuing Early Intervention by Mrs. Bee